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Txmom
Txmom
2 months ago

Dr Berry, I have always thought my husband is type 1 not 2.
Do you have a video or something on how to get tests approved to check for type 1?

He was diagnosed diabetic in his early 30’s after losing 30 lbs (mostly muscle loss) between Thanksgiving and Christmas eating more carbs than normal, horrible headaches, large eggs sized boils, didn’t heal well, waking up several times a night to pee.

Seems if type 2 losing 30 lbs would help not increasingly worse

He was quickly put on insulin and many pills. Metformin by itself wasn’t enough. This was over 30 years ago.
As a qualifying veteran he decided to use VA health services to reduce cost of meds.
He struggled to keep his a1c under 9. Some neuropathy, some numbness feet, etc.
Eating much less carbs seemed to help along with reducing insulin. No guidance from VA. They kept saying take another nutrition class which never helped.
Now he was waking up in night with very low glucose in the 40’s and 50’s.

We asked repeatedly for cgm so it would wake him up before dropping so low. Took much work to get them to approve one. First they took a non fasting c peptide test. It was very low, almost as low as type1 fasting cpeptide test. They never mentioned it, I found it in his records.
With cgm he was quickly able to get his a1c between 7 and 7.5. That is great they say.
I read that is still too high. So I tell him to question his Dr.
It is difficult to lose weight shoving quick carbs in your system when you aren’t hungry because it is too low.

Dr’s solution was we have this wonderful weight loss shot, it’ll do wonders. They talked him into it, he only tried 2 months. Didn’t lose an ounce, only slowed his already slow digestion more.

Comments he has gotten from various Drs

If you were type 1 you would know it, since you’re asking you’re type 2

I don’t understand it is like your body doesn’t make any of its own insulin but you are type 2

I went with him to request referral to local endocrinologist and gave my reasons. Diabetes also runs in his family. Dr was like you are asking right questions, but endocrinologists are a waste of money. All you need is insulin and ability to test glucose levels. Type 1 and 2 are treated basically the same. And it is possible he burnt out his pancreas. That can explain the low peptide. I bet he is type 2.

Note when I say Dr it is a variety of various medical practitioners over time

Txmom
Txmom
2 months ago
Reply to  Jack Spirko

Thanks!

Chris
Chris
2 months ago

What about using one of the online lab services like privatemdlabs.com? How do you present the results to your PCP?